Bibliography

These are links to the articles, announcements, speeches and reports we’ve read about and researched during the last six months:

• Do the latest wave of health apps really improve patient care?
• "Means well" technology and the internet of good intentions
• Research says basic activity trackers are dead
• Mental health apps given prize fund
• Health Secretary outlines vision for use of technology across NHS
• The world’s new health goal will need game-changing health technologies
• How are we today? Study lets patients help write medical notes, Google doc style
• NHS versus Agency: why nurses choose their work
• Nursing agency's £43m NHS payday
• How nursing agencies making billions are bleeding the NHS dry
• Agency nursing costs £450m
• Clampdown on staffing agencies charging NHS extortionate rates
• The first wave of test beds
• Lives being put at risk, NHS report suggests
• DigiWards – The first digitally enabled hospital wards in the country(?)
• Tech companies come together to create The Internet of Things Security Foundation
• Global diffusion of healthcare innovation | WISH - World Innovation Summit for Health
• NHS-approved apps found 'leaking' ID data
• Digital health in the UK: an industry study for the Office of Life Sciences (PDF)
• Hospital wifi keeps patients in touch with their care
• Supporting people to manage their health: An introduction to patient activation (PDF)
• Exploring the cost of care at the end of life - research report (PDF)
• Enhanced health in care homes Vanguard presentation (PDF)
• What's important to me. A review of choice in end of life care (PDF)
• Deep shift: Technology tipping points and societal impact
• The (very precise) future of medicine
• Hospices - The potential for new media
• Developing a national user movement of people with dementia
• Hospital chief: Hunt's conning you, NHS is broke and crippled by fear
• More old people in hospital as community care 'starved'
• Transforming our health care system: ten priorities for commissioners (PDF)
• End-of-life care GP inquiry research paper (PDF)
• People in control of their own health and care: the state of involvement (PDF)
• Patient power and technology 'changing medicine'
• Patient power: threat or opportunity?
• Safety vs autonomy in residential care
• HELIX Centre project: Communicating End of Life Care guidance to clinicians on the front line
• Lizzie Ostrom wants to transform people's lives through their noses
• Google adds a "dead-man's switch" - uses cases from torture-resistance to digital wills
• How to jump-start a digital transformation
• NHS to begin denying people hearing aids for first time
• Breaking: NHS England to receive £4bn budget increase next year
• Bringing house calls cack with UberHEALTH
• Outsmart the flu with UberHEALTH
• Bitwalking dollars: Digital currency pays people to walk
• Spending review reveals '21 per cent cut' to non-NHS England health budgets
• 'Potential agreement' in junior doctors row
• Technology £1bn could be tied to free wi-fi goal, Kelsey predicts
• Moving digital forward in health and care
• Invisible patients: A caregiver’s story
• Technology's biggest untapped market is elderly care
• NHS vanguards: redesigning the aeroplane in flight
• NHS hooks up with dating app Tinder on organ donations
• Community pharmacy access to Summary Care Records - POC report (PDF)
• National information standard data items summary
• Electronic Palliative Care Co-ordination Systems (EPaCCS) in England
• Resources for rehabilitative palliative care
• Doctors urged to treat dying patients as individuals
• NICE: Improving care for adults at the very end of their lives
• Five reasons some doctors are learning to code
• How to win a healthcare hackathon before it starts
• Does going into hospital make you sick?
• Free wi-fi to be provided in all NHS buildings
• How the internet of things limits consumer choice
• Reducing the trauma of hospitalization
• CQC Inequalities and variations in end of life care (PDF)
• Do the elderly have a voice? Advance care planning discussions with frail and older individuals
• An introduction to advance care planning in practice (PDF)
• Living and dying: responsibility for end-of-life care in care homes without on-site nursing provision
• Thinking ahead - the need for early advance care planning for people on haemodialysis
• Resuscitation decisions for patients dying in the community
• P references and priorities for ongoing and end of life care
• Planning for tomorrow whilst living for today: the views of people with dementia and their families on advance care planning
• Is the qualitative research interview an acceptable medium for research with palliative care patients and carers?
• Death, redesigned
• PearsonLloyd hospital redesign "reduces violence by 50 percent"
• Toward humane tech
• Care plan overview - Health Developer Network
• Scottish Government launches its strategic framework for action on palliative and end of life care
• University of Derby lecturer publishes book to help professionals working in end of life care
• Free mobile app to help access Sheffield health services
• Digital forms fail on end-of-life care
• A thank you letter to David Bowie from a palliative care doctor
• This is the NHS
• CoCare: tech for outcomes based commissioning
• Co-ordinating care with Jointly - Kate's story
• Palliative care coordination information standard
• ​Sleep tech will widen the gap between the rich and the poor
• How we used to die; how we die now
• Google Cardboard saves baby's life
• Data infrastructure for internet age healthcare: an introduction
• This NHS care doctor has published a tribute to David Bowie
• GOV.UK Verify: Technical delivery update
• How the next mayor can turn London into a truly digital city
• Spike in mental health patient deaths shows NHS 'struggling to cope'
• Motivation and confidence: What does it take to change behaviour? (PDF)
• Liberating voices to maximise patient partnership in acute care settings
• My discharge: getting discharge right for someone with dementia
• Dignity in a digital world | co-design digital health and wellbeing
• Podcast: How members of a WhatsApp group are organising heart transplants across India
• The moving finger moves on
• Pioneering data sharing service proposed for Greater Manchester
• Personalised health and care 2020: a framework for action
• Joined up health and social care planned for Islington
• NHS Contracts: Tender Issues, BBC Radio 4
• For pensioners, something is spot-on in the state of Denmark
• Lana Spawls · Diary: what a junior doctor does
• ‘No one looks at the whole of me,’ my mum says. How the NHS is breaking apart
• Loneliness 'forces older people into hospitals' and strains services, say senior doctors
• Myo Armband: the wearable that controls the web through gestures
• Tech money to fund transformation
• Impact of a home-based social welfare program on care for palliative patients in the Basque Country
• Article: Connecting the dots
• Patients and staff as codesigners of healthcare services
• Planning for 2016/17 and beyond: from survival to sustainability
• Did Google's tax antics kill the People's Uber?
• Robotic exoskeletons are here, and they’re changing lives
• Failure as catalyst - Impact Design Hub
• Not just a death, a system failure
• Out of the box - a special project for Samsung  
• How do you smooth the path to a digital NHS?
• Tweets from the afterlife
• Dependence, decrepitude and death: how long is too long a life?
• NHS.UK Alpha - Booking
• Designing the future of NHS.UK
• Popup guerrilla testing in a Leeds GP practice
• Booking is critical for transforming healthcare
• Booking with context | NHS.UK Alpha
• If general practice fails, the whole NHS fails, argue healthcare experts
• Smooth operators - a  new report reveals the scale and purpose of app-based earnings
• Our strange, unsettled history of mourning
• Google's DeepMind forms health unit to build medical software
• A manifesto for public technology | Civicist
• An open manifesto for housing
• Necklace aids child vaccination
• Tech could offer the NHS 'quick wins'
• People get happier as they approach 70, study finds
• Ten design principles for place-based systems of care
• UK health tech group devises apps to detect mental illness
• Tech innovations that could improve lives in 2015
• NHS to help create 'healthy new towns'
• Designing a hospital like a village could solve one of Africa’s biggest health problems
• State pension age could rise faster than expected, say experts
• The Feds have let the cyber world burn. Let’s put the fire out
• Would you pay $120,000 for the chance to live forever?
• Are you thinking about social care?
• Everything is connected
• Meet SeppuKuma, the robotic bear engineered to aid in assisted suicide
• Japanese engineers design robotic bear to aid in assisted suicide?
• The strong robot with the gentle touch
• A staggering one million people have now pre-arranged their own funeral
• Manifesto | Engineering at Home
• Death is a high-tech trip in Japan's futuristic cemeteries
• Harvard researchers discovered the one thing everyone needs for happier, healthier lives
• Dsxyliea
• What about Fred (and his dog)?
• Fred and his dog: an update
• Five year forward view (PDF)
• openEHR - A game changer comes of age
• Beyond the Hawking Horizon
• Can integrated care satisfy all of Fred’s needs (including patient empowerment)?
• The vision for GOV.UK is to make government work for users
• Future of ageing
• Britain's workforce in 2022: From a nation of pen-pushers to an army
• The nation's first hospital makerspace for nurses is reinventing medicine
• Re-designing end of life care
• Why we should worry about hackable hearts
• The future of medicine - the role of doctors in 2025
• TechBite on assisted living
• End of life care for adults | NICE guidance
• How Gallaudet University’s architects are redefining deaf space
• The Hippocratic Post - a blog on the world's medical issues
• Healthy Prestatyn - the new model
• Summit 2016 - Huw Davies explores how the relationship between doctors and managers has changed over the last decade
• Helping complex systems change: highlights of session
• Facebook is a growing and unstoppable digital graveyard
• What it really means to have a "good death" - and how America is doing death wrong
• DMC Thought: Moving healthcare to the community
• Austerity and old-age mortality in England
• The NHS is a much bigger challenge for DeepMind than Go
• Behavioral responses of nursing home residents to visits from a person with a dog, a robot seal or a toy cat
• Learning from experience – part one
• What writing about death taught one woman about life
• NIB Workstream 1.2: providing citizens with access to an endorsed set of NHS and social care apps (PDF)
• NIB Workstream 1.1 roadmap (PDF)
• Themed review of end of life care | Care Quality Commission
• Transformathon - The Edge
• NIB Workstream 6 roadmap (PDF)
• Dying for change - Demos (PDF)
• HSCIC Accessible information standard
• Enriching SCRs with additional information
• One chance to get it right - report (PDF)
• NHS 111 and the summary care record (PDF)
• Open source, agile and devops core principles of NHS Spine 2
• Open-access test environment
• Digital delivery centre - HSCIC
• A narrative for person-centred coordinated care (PDF)
• National survey of bereaved people
• The lived experience of older adults report (PDF)
• SCR - e-learning module 1.0 SCORM
• Clinical use of the Summary Care Record — Health and Social Care Information Centre
• Improving care in the last days of life - Bee Wee
• NHS CRS - Summary Care Record national implementation concept training (PDF)
• Adaptive and personalised: the future of care planning
• Hacking capitalism with capped returns — Enspiral Tales
• Reimagining place-based health: A major new commission from NLGN and Collaborate
• Meet the GPs - Channel 5
• Describing personas
• End-of-life care needs urgent attention
• Loneliness in Waitrose
• A little guide to working with online communities
• The conversation about dying is not enough
• The Design Impact Chart
• Seeker Network
• Around the clock care for dying 'not good enough'
• End-of-life care in NHS still not good enough, report finds
• Larry Weed's 1971 Internal Medicine Grand Rounds
• End of life care audit: Dying in hospital
• NHS Outcomes Framework: at-a-glance (PDF)
• The Digital Doctor: Hope, hype, and harm at the dawn of medicine's computer age
• In Scandinavia, “patient hotels” provide an alternative to hospitals
• City united
• DALLAS digital resource | Digital Health and Care Alliance
• Compassionate cities
• Where do we find ethics?
• Put down all behaviour hurtful to informality!
• “It’s not worth me having a long-life lightbulb”: Attitudes to death among the very old
• How we manage risk when we use open source in health
• Death and the oldest old: Attitudes and preferences for end-of-life care
• Just Turned 40? An architect says it's time to design for aging
• When to call it quits?
• Can digital health improve quality-of-life at end-of-life?
• Give and take scheme provides a new blueprint for elderly care
• Leading the care revolution by giving and taking
• The changing NHS
• Q&A: The NHS shake-up
• Health and social care Act 2012: fact sheets
• Integrated care pathway empowers people to manage their long term condition at home (PDF)
• Leeway
• Care home crisis won’t be solved by just paying more, says Justin King
• An overview of Compassionate Communities in England (PDF)
• Making our health and care systems fit for an ageing population (PDF)
• Kill the patient portal
• eDayBook - Independent living through health monitoring
• Amelia Gentleman on a day in the life of a care home for older people
• Pioneering radio show produced in care home
• From Afghanistan with love
• Charlie and Marie: A tale of ageing
• Wanaka start-up targets grandparents with social media app
• Ambulance privatisation descends into 'total shambles'
• "Red Bag" initiative to help people living in Sutton care homes
• The perfect generation. Is the internet undermining young people’s mental health?
• Innovation is overvalued. Maintenance often matters more
• The things that carried him
• People, not medicine, will save the NHS
• What needs to be done to secure the future of the NHS?
• Shanghai says people who fail to visit parents will have credit scores lowered
• How Boots went rogue
• Communities must be more fun for the elderly to combat loneliness,
• Building companionship - Demos
• The social value of public spaces (PDF)
• An alternative age-friendly handbook (PDF)
• Absurdity and the sensible decision (PDF)
• Professor Allan Kellehear to introduce the Compassionate City Charter
• We cannot fix people’s grief, only sit with them, in their darkness
• Everything is connected
• Flax wins contract with NHS Wales to support Apache Solr for Welsh Clinical Portal
• Talking to the world with Thington
• The head of “X” explains how to make audacity the path of least resistance
• 2016 GSK IMPACT award winners
• A framework for thinking about systems change
• What we mean by service design
• Paperwork needed for a flight from Washington, DC to London
• The new old
• Why elderly deaths from abuse are part of wider pattern of violence against women
• Disney’s $1 billion bet on a magical wristband
• Journal: 'In Studio: Recipes for Systemic Change' book, and Helsinki Design Lab
• Death doulas: helping people face up to dying
• Tumour survivor hands out ‘Cancer on board’ badges on underground
• Dementia diaries
• A maker space that helps kids create during long hospital stays
• Uninvited guests
• Don't be an entrepreneur, build systems
• 'Excuse me. May I have your seat?'
• Technology and patients are the keys to saving healthcare
• Mixed picture of digital maturity in NHS revealed
• The ^[a]  UX of ethics: Should Google tell you if you have cancer?
• Academic kills herself after importing 'euthanasia kit' illegally
• U.S. suicide rate surges to a 30-year high
• How people learn to become resilient
• Building resilience
• Vanguard vision | Airedale NHS Foundation Trust
• Casserole club | I'm no expert
• How to... create a neighbourhood food sharing scheme
• Inclusive design framework
• Never design for yourself: Ken Kirton on how to co-design with a community
• The Gold Line | Airedale NHS Foundation Trust
• Manchester Asda brings in 'quiet hour' for autistic shoppers
• How is the new NHS structured?
• Zigzag inventions
• Panasonic's pink Dalek delivery bot has been cleared for hospital work
• s3e17: Funny, I've always believed that the world is what we make of it
• Emergency care and CPR decision-making
• Patient passports
• Really?
• Digital records in the NHS
• Over 50s drive Facebook growth, study says
• Stories from the day hospice
• Revealed: Google AI has access to huge haul of NHS patient data
• Announcing Kara | meeting cancer with mindfulness
• Three keys to unlocking systems-level change
• Google AI gains access to 1.2m confidential NHS patient records
• 'Unacceptable' that families 'not told of resuscitation plans'
• The telehealth problem (and opportunity)
• Designing housing to build companionship in later life
• Terminal cancer: how to live with dying
• Study finds social media use beneficial to overall health of elderly
• Can the web save social care
• Six things to change in community healthcare for older people
• Learning about patients’ experiences of care in their own homes
• Cancer on Board!
• Who cooked Adam Smith's dinner?
• Operating costs
• Google artificial intelligence company has access to 1.6m NHS records
• Google's DeepMind shouldn't suck up our NHS records in secret
• ‘Talking gloves’ translate sign language to speech
• Google DeepMind: Q&A
• A message of hope for the NHS
• Causes of GP crisis revealed in new analysis
• Improved circulation: Unleashing innovation across the NHS
• Palliative care funding review (PDF)
• NHS technology: saving the health service one byte at a time
• Fewer people die in hospital at weekends, study finds
• Activity tracker stops hospital admission
• Unpaid carers in England 'struggling', report says
• Envisioning a digital health advisor
• Differences in access to end-of-life care revealed in report
• Do I need NHS ethics approval?
• Window on the world: video conferencing for older people
• Patients sent home afraid and with little support
• Future of an ageing population lead expert group
• How might we reimagine the end-of-life experience for ourselves and our loved ones?
• Golden oldies
• Efficiency research programme | The Health Foundation
• Google releases keyboard for the iPhone with built-in search features
• Where are human subjects in big data research? The emerging ethics divide
• Is evidence-informed policy just a pipe dream?
• Google's NHS deal does not have regulatory approval
• The world is designed for men
• Caring and why home first is important
• Even basic phone logs can reveal deeply personal information, researchers find
• NHS England Accessible information standard
• Scoping review @ESRC: Ways of being in a digital age - anyone applying?
• 'Hidden army' of carers in their 80s, says Age UK
• When someone dies: a practical guide
• Example record templates
• UK end-of-life care 'best in world'
• Acute care toolkit 1: Handover
• Doing the hard work to make accessibility simple
• We doctors can’t prescribe a ‘good death’
• Building tech-powered public services
• Dialog: Designing a wearable for chronic conditions
• Google’s new app lets anyone do scientific experiments
• The invisible aged: the people politics forgot
• Calling all makers, hackers and users: help create the world’s first open source wheelchair
• When a passenger dies at sea: what you need to know
• Transparent electronic health records and lagging laws
• Transmitting a political vision through larp
• Supporting patients and families after hospital discharge following critical illness
• The men who live as dogs: 'We're just the same as any person on the high street'
• Let’s die better
• Designing for the elderly: Ways older people use digital technology differently
• Philippa Gillespie died after hospital penicillin error
• Why 'assistant-as-app' might be the next big tech trend
• Apple is working on an AI system that wipes the floor with Google and everyone else
• How technology hijacks people’s minds — from a magician and Google’s design ethicist
• Designing a dementia-friendly website
• How happy chatbots could become our new best friends
• Cardiac rehabilitation
• Hospitals near full EHR adoption
• Online communities and loneliness - what we found
• Learning through prototyping: tools for Universal Credit claimants
• What do think tanks and product studios have in common?
• In Ikea's kitchen of the future, you won't have a fridge, but you will have drones
• Why showing the thing to everyone is important
• About loneliness | Campaign to End Loneliness
• How doctors take women's pain less seriously
• Harnessing the power of young people to transform health and social care services
• End of life care to be rebranded as it makes patients fearful
• Panorama - Living with dementia: Chris's story
• Moving from trust to trustworthiness: Experiences of public engagement in the Scottish Health Informatics Programme
• Alexa skills kit voice design best practices
• Capita forms exclusive partnership with BMJ to enhance patient care
• Digital doctors: Are video GP consultations the future?
• In a world dominated by Apple and Google, this company wants to forge a third way
• NHS memo details Google/DeepMind’s five year plan to bring AI to healthcare
• Chris Maury on voice-first design
• The Spanish town that runs on Twitter
• Ethnography: a prototype (PDF)
• Four steps to a more caring economy
• Social care workforce
• Sylvain Calinon on "Human-robot interaction"
• The next Uber for healthcare
• Locum GP rates 'linked to deprivation', British Medical Association warns
• Will Salesforce Health Cloud crush the electronic medical record?
• Apple announces new IoT app called Home
• How can we be the very best catalyst for health innovation?
• Opening up Sao Paulo’s health innovation system
• The design bias of heart failure
• The emerging ethical standards for studying corporate data
• Be careful what you code for
• Telehealth pilot – use of commercially available medical devices
• Grandson shares nan's polite Google search
• The Future Mundane at dConstruct
• Ethics of sharing and re-using medical records for research
• NHS to offer free devices and apps to help people manage illnesses
• OpenAI technical goals
• The NHS needs a strong dose of tech investment
• The challenge of taking health apps beyond the well-heeled
• Human scale technology
• How red bags are bringing NHS and care homes closer
• Personal health record (PHR) - final report
• Safeguarding research participants with a bill of rights
• A health app's AI took on human doctors to triage patients
• Department of Health shake-up revealed
• Care, automation and design
• Hot-cold empathy gaps and medical decision making
• Dame Fiona Caldicott on data-sharing in health and care
• Indie Manufacturing - Interview: Patrick Fenner
• Government commits to high quality end of life care
• How to set up your own digital health startup
• My NHS website to provide new data tools
• Dhaca’s medical apps process (PDF)
• Independent patient data taskforce announced
• Review of data security, consent and opt-outs
• Moorfields, Google - and a problem with sharing
• Model release: Respectfully sharing stories
• NHS data-sharing project scrapped
• The perils of using technology to solve other people's problems
• Is integration missing the point of care?
• Solving all the wrong problems
• We need to talk about getting old, says charity
• This pink light helps pregnant women find a seat on the tube
• We need to talk about AI and access to publicly funded data-sets
• Skype consultations should be as common as stethoscopes, says GP leader
• The barriers for digital health startups
• The government has dropped a bombshell announcement while we were all looking the other way
• Why open source software matters for government and civic tech - and how to support it
• The DIY diabetes kit that's keeping us alive
• Joined up health and care needs a giant leap forward
• Why Google wants your medical records
• MIT wristband could make AC obsolete
• Nesta Health Lab: one year on
• Game-changing moment for the NHS in England?
• The plan to end all plans